FOMO

 I’m really sick of regular people that just don’t get what it’s like to be disabled. It’s seriously devastating,  so don’t be disrespectful. I can only speak for myself. I’ve really been through a lot and I get really tired of people not understanding that. Since I’m getting to know myself without a brain tumor, it takes a lot to really bother me. My personality did change and I have a new love of sun dried tomatoes. Since I only really get upset at major things, getting over things is a lot harder for me.

If more able bodied people knew what it’s like to be disabled then accessibility wouldn’t be an issue. It’s insane that I physically can’t go everywhere. Because of my disability and because of poor accessibility I have major FOMO. But it’s not a fear of missing out, I’m actually missing out. It randomly happens.

Recently the sidewalks to and from my apartment were redone and it is so beautiful. I actually had to tell the apartment complex that it was just luck that I hadn’t hurt myself by falling out of my chair. A peril that is a real threat to folks in wheelchairs because a simple crack can take you down. When I did hurt myself I would sue them. ADA laws are no joke. Thank goodness that they exist. Legally it’s all I have to go by. 

I’m a person and I’m in a position where I have to rely on others. I think of having to wait every single time for a car service to take me from my MRI to the nursing home and I’m sick of the waiting that I constantly have to do. When the car was scheduled, I always had to wait for it to arrive at the doctor’s office. We’re not talking about 5 minutes, we’re talking about 30 minutes at least. It’s incredibly annoying and crazy frustrating just waiting to be picked up. The car service was late every single freaking time.

The saying that I always think of is, “If you don’t value yourself, you don’t value your time. If you don’t value your time then you won’t do anything with it.”